Resources
Understanding a Down Syndrome Diagnosis is an accurate, balanced, and up-to-date booklet for use when delivering a diagnosis of Down syndrome and is part of the National Center for Prenatal and Postnatal Down Syndrome Resources at the University of Kentucky’s Human Development Institute (HDI).
DownSyndromePregnancy.org is part of the National Center for Prenatal and Postnatal Down Syndrome Resources at the University of Kentucky’s Human Development Institute (HDI).
The website offers a free downloadable practical guide for expectant moms, Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome which was co-written by KIIDS member, Nancy McCrea Iannone. The website also hosts an interactive blog, which gives expectant parents a place to ask questions, voice concerns, and receive feedback.
LOCAL RESOURCES |
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| New Jersey Early Intervention Program | http://nj.gov/health/fhs/eis/index.shtml |
| New Jersey Coalition for Inclusive Education (NJCIE) | http://njcie.org/ |
| New Jersey Children’s System of Care | http://www.performcarenj.org/index.aspx |
| Statewide Parent Advocacy Network (SPAN) | http://www.spanadvocacy.org/ |
| Trisomy 21 Program at CHOP
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http://www.chop.edu/centers-programs/trisomy-21-program |
| Nemours/DuPont Hospital (DE) | https://www.nemours.org/service/medical/down-syndrome.html?location=naidhc |
NATIONAL/INTERNATIONAL RESOURCES |
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| National Down Syndrome Society (NDSS) | http://www.ndss.org/ |
| National Down Syndrome Congress (NDSC) | http://www.ndsccenter.org |
| Global Down Syndrome Foundation | https://www.globaldownsyndrome.org/ |
| Down Syndrome Diagnosis Network | http://www.dsdiagnosisnetwork.org/ |
| Down Syndrome Education International | http://www.dseinternational.org/en-gb/ |
GENERAL RESOURCES |
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| The Woodbine House | http://www.woodbinehouse.com/Down-Syndrome.29.0.0.2.htm |